Football tournament and family fun day will raise money for Whittlesey girl Effie Hadman.
- Credit: Archant
Sportsmen will be putting their best foot forward for a charity match to raise money for a Whittlesey girl suffering from a rare disorder.
A charity football match and family fun day is being staged in Whittlesey to raise money for Effie Hadman who suffers from Batten’s Disease, which as yet does not have a cure.
Four year-old Effie Hadman, of Whittlesey, was healthy until the age of two. But the worsening neuro-generative disorder has meant she is now unable to walk or talk and struggles to swallow. She has lost the ability to sit and control her head, so she has been spending most of her day in bed.
Earlier this year she was given a new specialist chair provided by Newlife Foundation for Disabled Children.
The charity day takes place on Sunday July 26 at Whittlesey Athletic Football Ground in Drybread Road, with kick off at 10.30am.
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There will be a speed fun which is a test power of shot, face painting, bouncy castle, penalty shoot outs, burger and ice cream van, raffle and tombola with top prizes of a 42” TV, a £50 Marks and Spencer voucher, a hot air balloon ride and a weekend break in Great Yarmouth.
There will also be a chance to meet Posh mascot Peter Burrows and Posh manager Dave Robertson.
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Last year Effie’s parents set up used stamp collection boxes around the Fens to raise funds to find a cure for Batten’s, a rare terminal disease which has seen their four year old daughter go downhill rapidly in less than a year.
Batten Disease is caused by a genetic fault, which means the child is deficient in an enzyme which removes waste from the brain. The waste builds up and brain cells die.
Children lose all of their abilities and become completely blind, demented and bedridden.
Carly and her husband Paul are carriers for the rare disorder. The one ray of light is that their one year old son George does not have the disease - he was six weeks old when they discovered Effie was terminally ill.
Visit their Facebook page at Effie’s Battle With Battens Disease for more information.