Her story moved the Duchess of Cambridge to tears and now brave little Beatrice Smith is set to become the face of a campaign to help thousands of seriously sick children and their families.
Beatrice was less than three months old when she died in February 2014, after being diagnosed with the very rare heart condition restrictive cardiomyopathy at just six weeks old.
Now, in a courageous move, her mother Leigh Smith, 34, has decided to share one of their most precious moments together with thousands of commuters as part of a new poster campaign.
The aim is to raise awareness and funding for East Anglia's Children's Hospices (EACH) nook appeal - a £10 million fundraiser to build and equip a new children's hospice.
The current hospice in Quidenham is restricted in its facilities and development and has become unsuitable.
Click here to watch a video of the proposed plans for the Nook.
A photo of Mrs Smith holding Beatrice on her shoulder will feature in the advertising campaign on 106 buses across the Norwich network operated by bus company First Eastern Counties.
On seeing the poster for the first time Mrs Smith, of Warwick Street, Norwich, explained that although it was an emotional moment she felt proud of what Beatrice had achieved on her final day.
'I've seen this photo so often,' she said. 'It always brings back memories and it's nice to think that image she's given us with go on to help others.
'I feel she was here for a reason, and that she knew she was here for a reason, and maybe this photo was it.
'I'm just so proud of what Beatrice has achieved and how her story and photo is helping to raise awareness and funds to help such an important cause, not only to our family, but to the hundreds of families across the region relying on EACH care and support.
'We will forever be grateful to them for everything they have done for our beautiful girl and they will always be a massive part of our lives.'
Click here to read Beatrice's story in full, as told by her mother.
Mrs Smith, her husband Toby and their five-year-old son Elliott have received support from EACH since their daughter's diagnoses. They now continue to receive wellbeing support from the charity.
The story received national attention last year when Mrs Smith attended the launch of the nook appeal. EACH's royal patron, Kate Middleton, was so moved she gave Mrs Smith a heartfelt hug.
Gary Cook, EACH nook appeal corporate fundraiser, added: 'We'd like to thank Leigh's friend Rob Dodsworth, of Rob Dodsworth Photography, who took the beautiful photo of Leigh and Beatrice and has allowed EACH to use the image to raise vital awareness and funds.
'To be able to advertise completely free of charge in 106 buses across the Norwich network, means we're be able to reach a wide audience, whom we hope to inspire to donate to our cause. The beautiful picture of Leigh and her daughter Beatrice is an inspiration to us all, reminding us of the importance of the care and support services offered to local families.'
Ady Culpin, of First Midlands, South East and Essex, added: 'First is pleased to be supporting EACH and endorse the excellent work they undertake in providing care and support for families and their children who have life-threatening illnesses.'
• Do you have an inspirational story to share? Email reporter Donna-Louise Bishop or call 01603 772568.
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