Leverington family fun days helps raise money for toddler Reggie
- Credit: Archant
A village held a family fun day which raised hundreds of pounds for a local toddler who suffers from a rare condition.
Leverington staged the family fun day, which was its first for 10 years, which helped bring in £1,000 for the Reggie Brinton Microsilk bath fund.
Reggie was born with a rare skin condition which means he needs to be moisturised every two hours to relieve his skin from itching and cracking.
Fun day organisers said around 1,000 people attended to enjoy games and craft stalls as well as watching a junior football competition, an assault course and a display by Fenland Gymnastics Academy.
The day was rounded off with local girl band Pretty Aces and was a chance to raise more funds for the local appeal for Reggie Brinton Microsilk bath.
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A silent auction and ponies helped with a donation from the social club making a total of £1,000 raised to date this summer.
Further efforts are planned with a quiz night and live band planned for Friday 12 and Sunday August 14.
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Reggie, 18 months old, was born with a thick membrane all over his body which looked like burns.
He was in a humidifier incubator in the special baby care unit for two weeks because of his rare skin condition called ichthyosis. According to the Foundation for Ichthyosis and Related Skin Types (F.I.R.S.T.), ichthyosis is a family of genetic skin disorders characterized by dry, chronically, shedding, scaly skin that may be thickened or very thin.
He is constantly unsettled and frustrated as his body needs to be moisturised every two hours to relieve itching and cracking.
His sleep is constantly disturbed, he sheds skin all over his body every 12 hours and loses hair with the scales from his scalp.
His mum Leia has raised around £4,400 towards a £10,000 target to buy him a microsilk bath which in just 20 minutes provides a natural solution for cleansing, exfoliating and softening the skin to help reduce build up and thickness.
On his Go Fund Me page his mum said: “This bath will take those scales off in one session and he will have nice smooth skin for a few days which will be an amazing step forward for Reggie in making his life that little bit more comfortable.”