Mike and friends complete 54 mile trek for a charity which helps those with a rare hereditary condition
- Credit: Archant
A Wisbech businessman has participated in a gruelling 54 mile trek to raise funds on behalf of his niece who suffers from a rare genetic disorder.
Mike Avery, store director of Specsavers Wisbech, took part in the Caledonian Challenge along with four other members of his family on June 11 and 12.
The event saw them tackle the mountainous challenge in 24 hours across the Scottish highlands in aid of the XP Support Group.
XP is a rare hereditary condition that prevents skin repairing DNA after damage from UV rays. This results in extreme sensitivity to sunlight, and a tendency to develop eye and multiple skin cancers.
Mike’s nine year-old niece, Hazel, has had the condition from birth. It has meant that she hasn’t been able to take part in everyday activities due to her sensitivities, and can lead to her feeling quite isolated from others her age.
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Thanks to the help of the XP Support Group however, Hazel has now had a covered outdoor area constructed in her garden where she can enjoy the sunshine while being protected from harmful UV rays.
The team consisted of family members and friends. Calum Brewster, Lucas Avery, Andrew Gourlay and Daniel Avery competed with Mike, whilst Fraser and Zoe Crawford aided the team along the way.
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Mike says: “We raised an incredible £2,487 for a cause close to our hearts. I’m so proud of my family for getting involved and the Wisbech Specsavers team for their generous donations and kind words. We’re a step closer to giving Hazel and others with her condition a life without boundaries.
“Her condition can isolate her from a normal childhood and the ability to do the things that others her age can. Anything we can do to make her life easier or see her smile is a victory.”
The XP Support group, entirely run by volunteers, aims to help the individuals who suffer with the condition by providing support to both them and their families. The group raises funds for research and vital equipment to protect those with the condition, which currently has no cure.
Anyone wishing to make a donation can visit the store or the team’s page: http://www.caledonianchallenge.com/teams/WewillbeatXP
To donate to the charity visit Specsavers Wisbech 9 Market Place, Wisbech or call 01945 428 810.