Race night at Quinn’s Bar, Whittlesey raises £850 to help buy little Lotus a special bed
- Credit: Archant
A race night raised more than £850 to buy a Whittlesey girl a special bed so that she can sleep safely at night.
The fund raising night at Quinn’s Bar adds to money already collected by the Whittlesey Discussion Facebook page taking the total raised - in just a month - to more than £3,000.
An appeal was launched to raise £3,500 for the special bed for six year old Lotus Cameron-Daniels who at her most ill had 300 epileptic fits in 24 hours.
At just 17 days old Lotus Cameron-Daniels was diagnosed with epilepsy and what started with one or two fits a day increased to 10 a day.
She was diagnosed with intractable epilepsy which meant no drugs would work to control the seizures.
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After under going a nine and a half hour surgery for epilepsy she has now learnt to walk, read, feed herself, play and has learnt some sign language.
However, Lotus still cannot talk, has severe learning difficulties, no awareness of danger and surgery has left her with severe weakness of her left leg.
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She has been seizure-free for 18 months, six months of which have been medication free.
At the moment her mum Lorraine has to sleep next to Lotus for fear she will fall out of bed and be unable to alert her mum which prompted friends Mandy Wilson and Miriam Palmer to ask for help in raising money for the special bed.